Health Research, Vol. 4, Issue 2, Jun  2020, Pages 1-9; DOI:

Physical and Psychological Burden on Caregivers of Children with Intellectual Developmental Disabilities Attending Psychiatric Outpatient – Clinic - Khartoum State - Sudan (2019)

Health Research, Vol. 4, Issue 2, Jun  2020, Pages 1-9.


Amel Ahmed Hassan 1* , Abdallah Abdelrahman Mohamed 2

1 Community Health Nursing, Faculty of Nursing, Alzaiem Alazhari University, Khartoum North, Sudan

2 Psychiatrics, Faculty of Medicine, University of Khartoum, Khartoum, Sudan

Received: 20 January 2020; Accepted: 8 April 2020; Published: 19 June 2020

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Stresses among caregivers of children with intellectual developmental disabilities is pervasive and linked to lower quality of life, unhealthy family functioning, and negative psychological consequences. This study aimed to assess physical and psychological burden on caregivers of children with intellectual developmental disabilities. This was a descriptive cross-sectional hospitals based study conducted in Khartoum state at three outpatient psychiatric clinics which included Soba University, Omdurman Military and Altegani Almahi Hospitals. Simple random sampling method was used.  This sample included 300 caregivers of children with intellectual developmental disabilities that met selection criteria. Data was collected by the researcher using interview questionnaire and Zarit burden interview scale and analyzed by SPSS version 22. From the total of 300 caregivers, 273 (90.0%) were mothers, 274 (91.3%) of caregivers spent more than 8hours with their disabled children per day. Regarding caregivers burden, the physical burden was experienced by 102 (34.0%), while 126 (42.0%) complained of psychological burden. Family support for 154(51.3%) come from fathers of children, 273(91.0%) of them only participated in providing child needs. With respect to children with intellectual developmental disabilities 183 (61.0%) were males, disorders of 219 (73.0%) children started as early as age 0-4 years. One third of those children, 104 (34.7%) had epilepsy.  Moderate disorders were observed in135 (45.0%) of the children while in 197 (65.7%) was associated with convulsions. 112 (37.3%) were using sodium valporate for treatment while some children were using other drugs. The problem was that 187 (62.3%) had no affiliation. Chi square was used to determine the correlation between burdens and socio-demographic characteristics, where the overall burden ranged from mild to moderate (53.7%). The study concluded that the caregivers of disabled children experienced physical and psychological burden while caring for their children. Family caregivers who look after other family members need special assistance and attention; otherwise they would become totally depressed by the heavy burden.


Caregivers, Burden, Intellectual Developmental, Disabilities


© 2017 by the authors. Licensee International Technology and Science Press Limited. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


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